More about Chasing Connor’s Cure
Connor was diagnosed with DMD in February 2016, one of around 2,500 children and young people in the UK, and 300,000 worldwide. DMD is classed as a rare disease but it’s actually the most common fatal genetic disease diagnosed in childhood. People with DMD lack dystrophin, a protein the body needs for muscle strength and function. Although life expectancy has improved over the last ten years, people with DMD live only to their twenties or early thirties.
Connor’s mum and dad, Matthew and Emma Crawford, set up Chasing Connor’s Cure to accelerate the search for treatments and a cure for DMD. There are several treatments in the pipelines, and human clinical trials are underway in some of these areas. There is hope, but there’s also a constant need for funding to keep up the momentum. Chasing Connor’s Cure organises local events in and around Tonbridge to raise funds, so find out more here.
You can support Connor too click here