Connor Crawford from Tonbridge is 7 years old and has a form of Muscular Dystrophy called Duchenne (DMD). There is no cure, and without it Connor, and boys like him all over the world, won’t live their full years. So we’ve joined with Connor’s parents, friends and the community to #endduchenne.
We were delighted this year, as in 2018, to sponsor Team Connor in the Duchenne Dash 2019. The Duchenne Dash is organised by Duchenne UK, the national charity that’s seeking a cure for Duchenne. The Dash is a gruelling 24hr 300km bike sprint starting from London and finishing in triumph under the Eiffel Tower in Paris, and over the last two years it’s raised over one million pounds for the cause. And because it’s an exhausting challenge, among other things we provided cooling/heating water bottles for the Team Connor participants.
Next year’s Duchenne Dash is 12th and 13th June.
Tempted? Join Team Connor.
More about Chasing Connor’s Cure
Connor was diagnosed with DMD in February 2016, one of around 2,500 children and young people in the UK, and 300,000 worldwide. DMD is classed as a rare disease but it’s actually the most common fatal genetic disease diagnosed in childhood. People with DMD lack dystrophin, a protein the body needs for muscle strength and function. Although life expectancy has improved over the last ten years, people with DMD live only to their twenties or early thirties.
Connor’s mum and dad, Matthew and Emma Crawford, set up Chasing Connor’s Cure to accelerate the search for treatments and a cure for DMD. There are several treatments in the pipelines, and human clinical trials are underway in some of these areas. There is hope, but there’s also a constant need for funding to keep up the momentum. Chasing Connor’s Cure organises local events in and around Tonbridge to raise funds, so find out more here.
You can support Connor too click here
RUGBY FOR ALL: TONBRIDGE JUDDIANS RFC
Tonbridge Juddians RFC is the local rugby club for our Tonbridge staff. It offers the opportunity to play rugby to all ages, sizes, genders and abilities and runs five teams, including a women’s side, and a range of children’s teams.
We’re very proud to sponsor the Club, with our support focussed on the First XV and on the Minis programme. The First XV are currently top of the National 2 South League, and we’re aiming to keep them there.
We especially admire how the Club encourages boys and girls from under 6 to 11 to play, have fun and enjoy the game, through the Minis programme. Children under the age of six are gently eased into non-contact rugby, through play and fun activities. Under sevens and eights play non-contact “tag” rugby and, from the under nines upwards, the contact game is developed until you see 11 year olds train for, play and enjoy the adult game.
COMMUNITY FAITH AND BUSINESSES
We’re proud to support the parish magazine of St John’s Church at Hildenborough, and we’ve been doing this for 10 years, through advertising in the magazine and using the services of local tradespeople who advertise there, too.
St John’s believes that people matter, and we couldn’t agree more. We’re proud to belong to a community of people of all faiths or of none.
THE TONBRIDGE DAILY CALENDAR 2020
We’re thrilled to be sponsoring the Tonbridge Daily Calendar 2020, a gem of a project that all parts of our Tonbridge community contributes to in different ways. The brainchild of Tonbridge Daily blogger Suzannah Niklas, the calendar is bought by locals through community retailers, and the proceeds go to local charities. This year’s beneficiaries are the Hospice in the Weald, Rett UK and the 17th Tonbridge Scout and Guides.
What makes this calendar extra special are its images. The project invites local people to take photos of how they see Tonbridge and its environs and, after a judging process, 12 are chosen for the calendar.
The Tonbridge Daily Calendar is an opportunity for so many people to contribute in their own way, and we’re very pleased to be part of that.
This year’s local charities supported by the Calendar are:
Hospice in the Weald
The Hospice in the Weald provides care completely free of charge to patients with a terminal illness, their families and carers across west Kent and northeast Sussex.
People with Rett Syndrome, a rare neurological disorder, need constant lifetime care. Rett UK works to support sufferers, their families and to work towards new therapies and a cure.
The 17th Tonbridge Scout and Guide Band
This lively, active marching band performs all over the UK and is open to all young people in the Tonbridge area. They’re aiming to take America by a storm in 2020 and are actively fundraising for this big adventure.